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Parkinson's Disease: The Caregiver Perspective

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It takes time and support from others to understand and come to terms with Parkinson’s disease. If you are caring for a family member or friend who has Parkinson’s disease, here are some tips on how you can help:

  • Find out about Parkinson’s disease. You need to understand how the symptoms progress and how medication can affect it.

  • Think about the future. In the early stages, your life may not be affected much at all. Later on, as Parkinson’s disease develops, you may have to make changes and adapt. Planning ahead in matters such as housing, finances, employment and leisure will help you be ready for possible future decisions.

  • Look after your relationships. As Parkinson’s develops, there can be an affect on relationships. If caring for a partner, you may have to get used to different roles.

  • Encourage independence. Try not to take over, and offer support rather than too much advice and practical help.

  • Plan things together. Keep doing things you enjoy even if this means doing them differently. Try not to let Parkinson’s disease dominate everything.

  • Get support. There are professionals, such as your GP, Parkinson’s disease specialist nurse or social worker, who can give advice and practical help.

  • Talk about how you feel. You could talk to and get advice from other cares of people with Parkinson’s disease. By joining a local support group you can get emotional support or information

  • Take time for yourself. Looking after your own health and quality of life, will benefit both you and the person you care for.

Glossary

In the glossary you will find terms that we have provided with some extra-information.

glossary

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